Making AS a visible illness  | This AS Life

AS is an invisible illness: it’s hard for people who don’t have it to picture what life is like for those who do. So This AS Life had an idea – and we asked for your help.

 

Through our Twitter and Instagram accounts, we asked you to describe different aspects of your life with ankylosing spondylitis. Next, we took your words, added pictures and put them together in this article.

 

We want to make AS a visible illness. Because the more people understand AS, the easier life gets for the people who have it. So share this article with your friends and loved ones if you feel the pictures echo your life with AS. Better still, if you feel inspired, then share your words with us with a tweet (or comment on Instagram or Facebook).

 

First, we asked how you would define your AS

tinman

Chronic fatigue, naturally, was a common topic

drainer

But there were lots of other symptoms too

icepick

Hearing how non-spondys show their misconceptions about AS was a real highlight

diary

invisible

As were the posts on the positive attitude to life with AS

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And finally…we thought this post helped sum up life with AS

 

This article was written by one of the resident experts at ThisASLife.com. A social site helping the whole AS community to: Learn. Share. Inspire. Discuss. 

 

 

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The #Rheumers around EULAR 2016

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