DAN REYNOLDS

AS PATIENT

Dan Reynolds, lead singer of the Grammy Award-winning rock band, Imagine Dragons, was diagnosed with AS when he was 20 years old. Like so many others living with the disease, Dan’s path to diagnosis was not an easy one. His band was just gaining popularity when his symptoms first appeared, and the severe pain made it difficult for him to perform on stage. After finally receiving a proper diagnosis, he has been able to successfully manage his symptoms and get back to doing the things he loves most. Dan is dedicated to raising awareness of AS and supporting the patient community.    

 

ADI AHARONIAN

AS PATIENT

Adi Aharonian is a 19-year-old student, living in Northern Israel, who was diagnosed with AS five years ago. Despite the limits of her condition, Adi still maintains a busy social and family life, revolving around reading, dancing and cooking.

 

 

PRISCILLA TORRES

CHRONIC DISEASE PATIENT

A nurse and ‘social mobilizer’, Priscila Torres has been living with chronic pain for almost ten years. Founder of the blog Artrite Reumatoideand the #TwittAR social media movement, she is a leading advocate for patient empowerment and support across Brazil. Priscilla now divides her time between another three projects that she founded, the EncontrAR and Grupar RP patient groups and Health Bloggers, an online social empowerment project.

MICHAEL MALLINSON

AS PATIENT

 

After a ten-year struggle from onset to AS diagnosis, Michael Mallinson joined the Ontario Spondylitis Association (OSA) looking for support.  Having gone from ordinary member to Fundraising Chair to President of OSA to president of the Canadian Spondylitis Association Michael is one of Canada’s leading AS patient voices. From his senior role with the Canadian Spondylitis Association to his work with the Ankylosing Spondylitis International Federation, Michael has been at the forefront of change in AS care over the last ten years.

 

Now retired, Michael dedicates his energy to charitable fundraising and education on the burdens of AS, all to make sure that those now diagnosed with AS don’t experience the same challenges he did.

 

SAMUEL OLIVEIRA

AS PATIENT

Diagnosed with AS ten years ago, at the age of 27, Samuel Oliveira has become one of Brazil’s foremost advocates for AS patient rights. Through his blog and Facebook group, he provides information and support to thousands of AS patients as well as serving as a founding member of EncontrAR, a support group for patients with rheumatic conditions. Despite the challenges of AS, Samuel has maintained his chosen career in physical education, working as a swimming coach and personal trainer.

BJILLIAN MACKINNON

AS PATIENT

Diagnosed with AS just four months after giving birth to her son in 2013, Bjillian MacKinnon had to adapt quickly to both being a mother and an AS patient. She approached the challenge with the positive attitude developed during her career as an educator for children with behavioral issues and her time as a marathon and triathlon athlete.

Bjillian now works as an Education and Development Specialist at The Arthritis Society and sits on several arthritis-related boards and committees across Canada. A strong believer in fitness as a tool, she recently trained 16 people with arthritis to complete their first sprint-triathlon in 2015 and has become an enthusiastic AS ambassador.

ROBIN BRITTAIN

AS PATIENT

Diagnosed with AS 25 years ago, Robin has a strong interest in all aspects of AS care ranging from genetics to physiotherapy. As well as taking part in the NHS Expert Patient Programme, he has contributed to AS research at institutions including The Royal Hospital for Rheumatic Diseases, Bath; Oxford University’s Nuffield Orthopaedic Centre and the University of Alberta.

Most recently, Robin has been a patient representative at The British Society for Rheumatology, helping form guidelines for the use of biologics in treating axial spondyloarthritis (including ankylosing spondylitis).

KIRA LYNNE

PROFESSIONAL COUNSELLOR

Kira Lynne is a Life Coach, Professional Counsellor and Registered Holistic Nutritionist, based in Vancouver. She has lived with chronic pain and illness for over 20 years, and it was her journey to find answers that led to her book, Aches, Pains, and Love: A Guide to Dating and Relationships for Those With Chronic Pain and Illness. Kira is active on Twitter and Facebook, as well as having her own website

PHILIP ROBINSON

CONSULTANT RHEUMATOLOGIST

Dr Robinson is a Consultant Rheumatologist working at the Royal Brisbane Hospital in Australia. As well as treating people with AS and conducting trials of new AS treatments, Philip has recently completed a PhD focused on the genetics of AS.

He is particularly interested in how to diagnose people with AS earlier in the course of their disease, using better tools and diagnostic criteria. Dr Robinson discusses lots of rheumatology topics, including AS, on Twitter and on his blog

RONAN KAVANAGH

CONSULTANT RHEUMATOLOGIST

Dr Ronan Kavanagh is a Consultant Rheumatologist based in Galway, Ireland. He is a medical writer and blogger, plus a social enthusiast and vlogger

RICHARD HOWARD

AS PATIENT

Richard Howard has been living with AS for 26 years. He is a steadfast advocate for people living with AS, having founded a support group in Los Angeles, California where he lives, and serves as the Associate Executive Director of the Spondylitis Association of America. Richard is a devoted husband, father of two, and even a certified Yoga instructor!

CHARIS HILL

AS PATIENT

Charis Hill is an active advocate for arthritis, autoimmune and chronic diseases. She was diagnosed with AS in early 2013, and now leads the Spondylitis Association of America Support Group in her local Sacramento, California.
She works as a fundraiser, event planner, and valet bicycle parking lead for Sacramento Area Bicycle Advocates, and is also a professional model.

TOM O'DWYER

PHYSIOTHERAPIST

Dr. Tom O'Dwyer is a practicing physiotherapist with international experience working in a major teaching hospital in Dublin. He recently completed his PhD in Physiotherapy with his thesis "Physical Activity and Physical Fitness in Adults with Ankylosing Spondylitis".

MELONI THOMPSON

AS PATIENT

Meloni Thompson was diagnosed with AS over 10 years ago. A mother of two and avid blogger, she lives in Atlanta, USA, with her husband Lang and bulldog Bailey.

SHASHANK AKERKAR

CONSULTANT RHEUMATOLOGIST

Dr Shashank M Akerkar is a Consultant Rheumatologist at the Mumbai Arthritis Clinic and Research Centre in India. Describing himself as a ‘patient-centric Rheumatologist’, Dr Akerkar regularly tweets and blogs on a range of rheumatology topics (including ankylosing spondylitis). He is also the creator of an app specifically for patients with lupus.

FIONA WILSON

PHYSIOTHERAPIST

Dr Fiona Wilson is an Assistant Professor at Trinity College Dublin and a qualified physiotherapist; with over 25 years of clinical and research experience. She works with Tom O'Dwyer. Among a range of shared research interests, together they're investigating the positive effects of physiotherapy for people with AS.

GILLIAN EAMES

AS PATIENT

Ankylosing spondylitis has lived with me for 30 years. Helping others with AS is so important to me as I remember the isolation I felt after first being diagnosed. I don’t wish that on anybody. I can now confidently say I am in control of my AS and that it is not in control of me. Positivity has helped me more than anything and I can’t wait to help others alongside This AS Life.

Find Support

Take on AS with an army behind you. Patient support groups can be there to celebrate with you in the ups and pick you up in the downs. They’re also great places to get practical advice about living with AS.

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